My name is Lanny and I am 17 years old. I’m a Junior at Rock Bridge High School.  I like to play baseball and ride horses. I also love dogs and Mizzou sports. Oh, and by the way, I have Spina Bifida.

I was born with an opening in my spine.  The doctors closed up the hole in my back, but some of the nerves in my back were affected.  And when nerves can’t communicate properly with the brain, the affected parts of your body lose the ability to move and feel.  That’s why I use a wheelchair to help me get around.


I’ve had 23 surgeries in my life.  And although I haven’t had a surgery in quite some time, I thought I should update my website.

Oh, and if you ever want to find out more information about Spina Bifida and things that go along with it, check out this site.  Also, here is a list of pretty good books related to Spina Bifida too.

Thanks for visiting my site!  If this is your first time here, then you might want to start at the first post, “Updates”, and work your way back.

Your friend,


24 responses to “Hello!

  1. Hi, Sweetie! I hope you like this website and I hope it helps you get through this next surgery a little easier. You are an inspiration to everyone, so stay strong and keep your head up high. We will all be here to help you through this. I love you always…and forever. (Nose kiss :)

  2. Michelle Chirpich

    Lanny, my mom worked with your Grandfather for many years and loved him so much. Your mom and dad attended school with me. I loved seeing your pictures from Disneyworld! What a blast! I just wanted to let you know that I am thinking of you and hoping your recovery is FAST so you can enjoy the rest of your summer!
    stay strong and keep your head up! :)

  3. Hi, Lanny! Mike, Sean, Colin and I just want to wish you a speedy recovery. We loved seeing your Disney pictures. Now, of course, my kids want to go too. When you are up to it, we would love to come to Columbia for a visit. Make sure your mom and dad spoil you rotten and take good care of you. Talk to you soon!

  4. Elizabeth Ubell

    Lanny! William, Brian and I will be thinking of you this week. We loved the pictures of Disney, too. But, we think William’s too little to go, still… don’t you? We love you and look forward to seeing you soon.

  5. GO TIGERS! I loved that you wore your Tiger’s T-shirt! Way to show your Tiger Spirit! M I Z…

    Good luck today and we can’t wait to have you back home :) See you in a few days.

  6. Hi Lanny, I’m from Moberly so I’ve known your grandma and great grandma for a long time. I found your grandma on Facebook recently. I guess it was God’s plan that I find her to find you so I can send prayers your way today!! Good luck to you and your doctors!

  7. Hey Lanny! I love your website, it’s very cool!
    Love ya bunches!!

  8. Hi Lanny, I am Julie Britts sister and an old friend of your mom and dad’s. My husband Tom is a policeman and he works a lot of Cardinals games. We can’t wait til you are feeling better and can come up for a game, I bet he can even get you down to the bull pen or take you to some cool places at the stadium. I am a physical therapist and you came to my hospital to see me when you were younger. I hope you feel better soon and keep working hard with your therapists so you can come see us soon. GO CARDS!!!!!! Tell your mom and dad I said hi!

  9. Mary Kate Stober

    Hey Lanny,
    Its Mary Kate can’t wait to see you this summer!!


  10. Lance Williamson

    Hey Lanny!
    Long time no see! My sister told me about your blog and i had to check it out. its really great! Isn’t cool that you got to see Olivia at the hospital? Well I dont know if you know yet but i cant make it to camp this year. I now live on my own in an appartment because i am in college now and taking a week off work would make me really scrapping for money for rent. i am so sad that i cant see you this year but i will hopefully be able to go next year. i miss you a lot and i hope you have fun at camp! Tell your fam i said hi!
    oh and also i thought you might like to know that this year i took public speaking and i had to do a speech about someone who has changed my life and guess who i did it on. YOU!
    Your friend and first counselor,

    • @Lance Williamson Hi, LANCE!!! Shoot. It’s such a bummer that you can’t go to camp. You’re in college? That’s crazy! I had no idea that you were that old! Send me a postcard the days after the dance and before the dance so we can stay in touch.

      Your friend,


  11. I would love to bring my puppy to show you but I’m coming to MO probably before I get my puppy. Next time though.

  12. Hi Lanny:
    I am a verrrry old friend of your grandmother Johnson, ie Jodi. We were best friends all the way from jr. high school thru high school. We even have the same birthday. Anyway, she told me about your webpage and so I had to read it of course. I really liked how you explained about spinal bifida. I have a granddaughter who is also going into 5th grade this year, her name is Emily. When I was teaching, 5th grade was my absolute favorite. So have a wonderful year this year in 5th grade!

    • @Gretchen Metz Hi, Gretchen! It’s wonderful to know your granddaughter is in 5th grade, like me. Where do you live?

      Your friend,


  13. Hello Lanny,

    It was such a pleasure meeting you and your mom in Hy-vee, Saturday afternoon. You were a definite highlight in my day. I look forward to learning more about you and sharing daily wonders. it’s late but I didn’t want another day to go by without communicating with you. Hope your day was all that you wanted it to be.

    Take care,

    • @Victoria Hey, Victoria! Long time no see! I was wondering that Saturday if you had any pets. I don’t recall you saying you did have a pet that Saturday. I might have just forgotten if you said you had any pets. So….can you tell me again? It was nice meeting you too! See ya later!

      Your friend,


  14. hey lanny if you have a dsi bring it for our next electronics party

  15. Hi lanny! hows the food? Cant wait intill you get back!

  16. are you online?

  17. Jokes:)
    how many kU fans does it take to fill a team 9 :)
    why where was the stadiam so hot?
    all the fans left!:)

  18. Lanny, my name’s Jim and I’m an old friend of your mom’s and just wanted to express my admiration at the determination you are obviously possessed with. We all go through life’s struggles, some of us better than others, and it’s heartening to know that there’s a 10 year old boy out there in the world who has the wherewithal to not only face his struggles head on, but also exhibits good humor and grace and heart. Bless you and your family.

  19. bless your heart lanny!! what is this your 19th suregy??? WOW!!!! i miss you and please write me back mrs henry is trying to set up skype so we can chat with you!
    lots of love from me and our class! -olivia
    p.s. get better buddy :)

  20. Hey Lanny!! Its Maddie. We met at your sisters swim meet! Im checkin out your website, like I pinky promised:)

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